Research and Data

Below are materials that PAR prepared and/or collaborated on with partners across the state and country. These materials are made public for anyone to use to bring more awareness and advocacy to issues facing the Intellectual Disability/Autism system. If you have any questions about these materials please email [email protected].

2022 Pennsylvania Direct Support 
Professional & Frontline Supervisor 
Compensation Study

Released November 18, 2022 
  Needs Exception Allowance Rate 
Change Survey
Released October 27, 2022 
Diversity Data Collection Survey 
Data Brief

Released March 2, 2022
  Systemic Factors Impacting Black 
People in the Workforce & 
Recommendations for ID/A Providers 
Discussion Paper

Released March 2, 2022
Pennsylvania ODP-Administered HCBS 
Proposed Rate Revisions Impact Analysis

Released January 19, 2022
  COVID-19 Pandemic Impact on the 
Pennsylvania ID/A Workforce Crisis

Released August 24, 2021
ID/A Community System Capacity 
Erosion due to the Pandemic

Released June 17, 2021

  Fiscal Impact of COVID on ID/A 
Provider Solvency
Released June 17, 2021
2021 IDA Case and Mortality Rates 
Study Summary
Released June 17, 2021 
  Impact of COVID-19 on ID/A 
Providers – Cash on Hand
Released April 30, 2020
PAR IDA Pandemic Findings White Paper
Released October 29, 2020 
  PAR IDA Pandemic Findings Infographic
Released November 13, 2020 
2019 DSP Compensation Study
Released January 20, 2019
  2020 Case and Mortality Report
Released October 26, 2020
Impact of COVID-19 on IDA 
Providers Data Brief
Released September 23, 2020
  Hospital Denial of Care One Pager
Released January 29, 2021
Provider Relief Fund Survey Results
Released November 20, 2020